>>2837539
>>2837635

I have also been on a steroid (budosenide) taper to stab out bad flares when they happen. Let me tell you that shit is like magic for me. I'm not on it all the time, it's not good to, but I have done a taper a couple times to stab out flares and that shit usually takes care of it at least while it's on. This most recent has sort of lingered though, deciding to return as soon as I stopped. I have also tried hydrocortisone suppositories. Those were not fun. This has all been at the guidance of my doctor.

I believe there is also a huge mental component to this disease, a component I have yet to properly address and manage. I really need to get into therapy or something because the worst thing about this more than anything is that I'm finding myself making excuses to go out because I just feel slightly off and I'm afraid ill shit myself. I've become such a homebody in the last few years and it absolutely kills me because I love being outside. I got sick, had reason to stay inside, lost a lot of my aptitude for being outside, gained weight, and now I'm just like, depressed and never want to do anything.

Further, thinking about toilets or going to the bathroom makes me need to go. So does waiting. Like being made to wait in line without an easy way out. Also I have this, I'll say near compulsion that I have to go to the bathroom before I go into a meeting at work, before I leave the house, anything that might maybe take more than 5 minutes I feel compelled to go to the toilet.

As far as getting out, there are days I feel good and I can make day hikes. I could probably do overnight camping if I had a guaranteed place I could go shit in the woods if I wanted. It's just kind of a play it by ear thing. I'm far from where I want to be.

Get with your doctor, and if you haven't gotten counseling, do it now because the mental aspect is 100% the worst part of this disease. It sneaks up on you. You can live a normal life though some day, I am sure.