Thread 33885843

to put a long story short, I injured my penis while masturbating three years ago, and as a result acquired a condition called hard flaccid syndrome; won't link to any articles here, but you can look it up yourself if you're curious, very nightmarish is all I'll say. I'm unemployed, can barely walk or function normally without pain and discomfort, cry several times a day, and due to the rarity of the condition I get no help from doctors; have seen upwards of 40 at this point. I've been in and out of hospitals and psych wards following several unsuccessful suicide attempts and feel like there's absolutely no point in living. my penis is numb, painful, and firm all the time; not erect, mind you, like it's firm when it's in the flaccid state. I've spoken to several people who have my condition these last three years, as we have a little online community. four of individuals I know for certain have taken their lives, and I'm sure there's countless more. I'm just at a loss, and don't know what to do, aside from ending it, but clearly it's much harder than it looks. it's no fucking depressing. the relentless pain and discomfort is one thing, but realizing I'm never going to have a girlfriend or family because of this feels, idk, indescribable. I'm like not even a human.

I have one, too.
It's called micro-phallus

>>33885843 (OP)
can't you just cut your dick off?

>>33885849
okay.
>>33885852
believe me, I have thought about it.

Im really sorry to hear that, honestly I can empathyse with your struggle somewhat well, I probably would also feel really purposeless, but perhaps instead of ending your life, you can make finding a treatment or prevention for this illness as your purpose. Anyway I wish you the best in life man.

>jorked it so hard he broke it
ha ha
>had to tell more than 40 people about it
ha ha

i'd talk to a plastic surgeon who does dick enlarging
get a ct scan on your pelvis to see if they can find the ruptured vein, then cap or replace it
if it's a heap of ruptured blood vessels - carving you up might prompt some healing
won't be cheap so maybe get an extra half inch while they're down there

>>33885843 (OP)
So how did you injure your cock?

i'm afraid i might be developing this

>>33886422
thanks man
>>33887385
>ha ha
ya, I know.
>i'd talk to a plastic surgeon who does dick enlarging
problem isn't about my dick being small. it's completely fine when erect. the problem is my flaccid penis is firm and retracted, and the pain and numbness. it's hell.
>get a ct scan on your pelvis to see if they can find the ruptured vein, then cap or replace it
I've done just about every test you can probably think of. everything comes back fine. due to the rarity of the condition, there's no established diagnostic procedure for it, and because it's likely nerve damage, the nerves of the area are too small to be picked up on an mri, ct scan, etc.
>>33887943
masturbation.
>>33888220
I wouldn't worry about it. it happens abruptly. just take care of yourself. don't jack off for hours at a time like I did, and never try to enlarge your penis.

>>33888389
a plastic surgeon who does dicks is probably going to be the most knowledgeable in the area, no one else is slicing up dicks that much
if you're really lucky, they might've accidentally done this to someone
call every dick specialist (not hospital - hence expensive) you can find for a phone consult
>uncontrolled bloodflow
>nerve damage
doesn't add up to me
i say torn blood vessels (unless theres a specific name for the gasket that keeps blood in there, then i'd say that)

>>33888449
check out the wiki article on the condition. it's basically an issue with the sympathetic nervous system. any blood flow problem is secondary to the smooth muscle tissue of the penis contracting.

>>33885843 (OP)
>hard flaccid syndrome
I'm so sorry anon. You'll probably have to get a vegana to have sex now

>>33888468
I can still get erections, so I can still have sex if I really wanted to. problem is I don't feel anything, and am in pain all the time, so it wouldn't be an enjoyable experience for me.

>>33888471
So you havent tried any neuropathic pain meds like tricyclics or antoconvulsants? If get can to just numbness then you'll be back to where many guys are. Bad but livable.

>>33888454
>smooth muscle tissue of the penis
and now i know what to call the dick-gasket
>nerves in the area probably all mashed up
damn, nerves are a real pain (ha) to fix
still, if they do surgeries where they tinker inside the shaft, they might be willing to go in there and replace or rip-out the nerve so it can grow back

>got me to look at a dick on wikipedia
got me ya bastard

wishing you some luck and a lot of strength bro

>>33888481
I take a very high dose of gabapentin and can only get my pain down to about a 5/10 from about an 8 or 9. I'll eventually try ketamine infusions, as they're known to help with chronic pain conditions, but they're expensive, and I'm broke and in the process of applying for disability.

>>33888493
>got me ya bastard
it's actually my dick, like unironically, lol. I wrote the article too. and thanks.

>>33888496
Truly hell. Can you access pelvic floor therapies?

>>33888513
I saw a pelvic floor therapist for 5 months, and had no improvement whatsoever. the reason why is because the condition isn't like muscle related. pelvic floor therapy is just what the urologist recommends when you visit them because they don't know what else to do. there's only 15 scientific papers published about the condition, all of which were published within the last 6 years, so most doctors don't even know it exists. but ya, it's hell.

>>33888519
Would removing the erectile tissue remove the pain, or is the origin in your case still completely unknown?

>>33885843 (OP)
>to put a long story short, I injured my penis while masturbating three years ago
How did it happen? If it makes you feel better whenever I try to have sex I lose my erection as soon as I change positions or put on a condom and yet I still have a girlfriend, there are women who genuinely don't mind

>>33888543
still completely unknown. I've had several nerve blocks, and didn't get relief from any of them, so the pain I'm feeling is likely the result of something called central sensitization, where the central nervous system just perpetuates pain for no reason. idk, the situation I'm in is just very dire, and unfortunate. because doctors and researchers and shit aren't looking into this, I have to do it myself, basically.
>>33888565
I was addicted to porn, and had very poor masturbation habits. I beat the shit out of my dick one night, went to bed, then woke up with pain and all sorts of bizarre, nightmarish symptoms. worst couple days of my life.

>>33888588
Is fucked how little effort doctors seem to put into this given how many pain conditions directly overlap with it. Hope the ketamine provides adequate relief.
Is there anything that can go into spine that has potential? Could things like psilocybin cause brain to shake it off a bit?

>>33888588
>I beat the shit out of my dick one night
what did you do exactly? how and why?

>>33888649
>Could things like psilocybin cause brain to shake it off a bit?
that's probably a bad idea without looking into it a ton
could just as easily make it worse, from the little i read about the condition
>I wouldn't worry about it. it happens abruptly. just take care of yourself. don't jack off for hours at a time like I did, and never try to enlarge your penis.
i see, ty anon
i think i had a minor stroke last year while masturbating, had severe migraines for a few months which have since gone away
trying to avoid uhhh yeah
best of luck anon

>>33888389
>I wouldn't worry about it. it happens abruptly. just take care of yourself. don't jack off for hours at a time like I did, and never try to enlarge your penis.
*

meant to tag that post

>>33885843 (OP)
How the fuck do you crank your cock so hard you literally break it? Was it made of leather by that point?

>>33890698
the condition is complicated & involves the spine/brain i believe, relentless smooth muscle contraction

>>33888649
>Is there anything that can go into spine that has potential?
I suppose the ketamine would do that, but ya, dissociatives like ketamine and psychotics are things people have been looking into lately. I could also try a drg stimulator, where they implant electrodes into your back at certain spots to turn down the nerve signal or whatever, though they're expensive, and to my knowledge only one person has done it, with no success though.
>>33890392
presumably stretched my dick out too far during masturbation, far enough to induce a nerve-stretch injury. idk what I was doing in particular besides just jacking off very aggressively.
>>33890519
thanks
>>33890698
good question. never goon, I guess; moral of the story.

>>33885843 (OP)
CRPS dick. Why is it hard though? Can't you just inject it with de-erecting juice?

>>33891377
The problem isn't being erect in the normal sense, OP said as much >>33888389

The problem is the second part of getting an erection. The two things that happen are
> your penis fills with blood
> the muscles in your penis tense up

The blood flow makes it grow larger and the muscles make it stiff. OP's penis apparently can't stop doing the second thing anymore so it's super painful since the muscles there are being constantly stimulated and stressed.

>>33885843 (OP)
>hard flaccid
Oh good grief OP jelqed too hard
Start running 30 miles a week, I have a feeling your mystical dick sadness will miraculously go away

>>33885843 (OP)
Which makes me wonder, does OP try to constantly stay fully erect/aroused to ward off the pain? Would be super ironic if the thing that caused his pain to begin with is the only reprieve he has from said pain.

>>33890961
>stretched my dick out too far
don't tell me you were trying to self-fuck

>>33891568
OP says here >>33888588 that the pain is no longer from his dick. What if removing erection tells nervous system to stop doing that

>>33891377
>Why is it hard though?
increased sympathetic nervous system activity along the hypogastric nerve
>Can't you just inject it with de-erecting juice?
it's not erect, nor is it a bloodflow issue. the smooth muscle of the penis is just constantly contracting.
>>33891577
>jelqed
personally didn't but have known many with this that have.
>Start running 30 miles a week
unironically have heard shit like this before
>>33891581
no. you're not going to believe this, but I haven't masturbated since january of 2023. I get erections when I'm sleeping, and get wet dreams, though my dick is more or less useless, it's like a scab that never heals, so imagine trying to jack off a scab, and imagine how pleasurable that would feel.
>>33891587
no, just aggressively jacking off
>>33891783
I still feel pain in and around my dick, but because the nerve blocks didn't work, my brain or central nervous system is tricking me into thinking there's still pain emanating from there

>>33888505
It's not very big anon

>>33892897
thanks

>>33892849
>it's like a scab that never heals, so imagine trying to jack off a scab, and imagine how pleasurable that would feel.
Damn that's horrible. Imagining what that would be like feels super weird.

>>33892849
>increased sympathetic nervous system activity along the hypogastric nerve
>the smooth muscle of the penis is just constantly contracting.
Serious question. The hypogastric nerve is inside your hips right? So have you tried massaging it somehow, like a prostate exam or something?

No I'm not trolling, that'd be the first thing that comes to mind for me. If I had some muscles that were constantly under stress I'd get massages to make them relax. Why can't you do the same thing with this? Yeah it'd feel super fucking gay but if it can get rid of the pain why not try it?

>>33892954
>The hypogastric nerve is inside your hips right?
no. it's the same nerve that controls the bladder, rectum, prostate, etc., like internal organs. the penis itself is basically an internal organ, but on the outside of the body.

>>33892977
>no. it's the same nerve that controls the bladder, rectum, prostate, etc., like internal organs. the penis itself is basically an internal organ, but on the outside of the body.
that's a bit concerning, but makes sense

electroshock your cock with one contact on your gooch (perineum) and the other on the frenulum

a 1000 microfarad cap charged to 100 volts might do the trick with 5 joules of energy

I am not a licensed doctor and this is not medical advice.
captcha: VGLAN

>>33893065
>a 1000 microfarad cap charged to 100 volts might do the trick with 5 joules of energy
erm...

>>33893048
>that's a bit concerning
ya think? lol. story of my life.
>>33893065
uh no. they do have this thing called shockwave therapy, it's for erectile dysfunction generally, but hasn't worked on anyone with my condition.

>>33893083
not enough juice

Can you still cum in any way?

>>33885843 (OP)
Jesus Christ anon what, I'm sorry. Damn, if I needed encouragement to stop beating my shit it's definitely, definitely now. Though, anon, it's not over for you. Just date someone who is asexual or simply not interested in sex. You're capable of love, both giving and receiving. As far as aspirations go humankind has been more than just sex for many many years. You can still create something that lives far past you. I love you anon, don't hurt yourself thanks

>>33893846
ya, ejaculation and fertility (sperm count or whatever) aren't affected at all, at least in my case, so I could still have children if I really wanted to, but sex and just living life in general honestly isn't comfortable or enjoyable.
>>33896948
thanks, and glad I could help, lol.

>>33885843 (OP)
Have you tried PT-141?

Have you tried a cock ring to keep it stiff with erection?

>>33885843 (OP)
Jesus how hard or frequently are you jacking off enough to legit break your penis
Explain exactly what you did to cause such a life changing injury
>Masturbating
No shit retard, HOW. I refuse to believe you did this masturbating like normal

>>33897507
no.
>>33897585
no, and I won't. I've spoken to a few guys that got this from using cock rings.
>>33897640
the penis was presumably stretched out too far, probably while masturbating in the semi-erect state. and you're right, I was not masturbating like "normal." there was a period of about 3 months or so leading up to onset where I was masturbating for literal hours per day, as it was the first time I was living by myself. I'd just come home from class and just jack off all night. over time I became desensitized to porn too, so to get myself off I'd have to do it more aggressively. I'm circumcised and never used any lube, too. the perfect storm, really.

>>33897690
>Dry fap for hours on end every day while circumcised
You deserve what happened to you, you retarded fuck
Anytime I hear of any guy 'dry fapping' I tell them the same thing
How hard is it to use lube? This all could have been avoided
Enjoy being a eunuch I guess
Dumbass

>>33897714
I've been dry fapping since I was 11 years old dude, but ya, I know.

>>33897725
I bet your dick is limp and more dry and cracked than a lakebed in a desert
Not going to say I never dry fapped but once I used lube I never looked back, its infinitely better in every way

>>33897768
I haven't touched my sick since january 2023. of course it's limp, I literally have a broken dick, not hyperbole.

>>33897690
>no.
why not give it a try?

>>33897789
If you've been dry fapping since you were 11 then no shit your dick doesn't work

>>33897791
I haven't looked much into it to be honest, but thanks for the suggestion

>>33897810
ya, because I injured it. I already know I fucked up, but I can't do anything about it now.

>>33897725
I used to dry fap because I precum a lot and could use it as lube, but straight dry fapping sounds fucking horrible.

>>33885843 (OP)
Do you live in a 1st world or a shithole country? Maybe seeking help abroad could be your only solution

>>33897975
america. my condition is exceptionally rare, like very rare, meaning there's only a handful of people around the world that even know it exists.

>>33897993
I'm really sorry, might the only way be to cut it off? It won't solve your future family/gf issue but it will at least make life bearable without pain

>>33885843 (OP)
Yo my clownish friend.
Good to see you around.
Advice or good words are nowhere to be found especially not here as you can see in the responses you got.
We are left to our own devices without help as always, sadly.
But yeah never having a partner or family and a fulfilling sexlife is definitely an indescribable feeling of pointlessness and hopelessness, I agree. Hard to describe.
Suicide is definitely not off my list, yet.....

>>33898065
in my darker moments, I’ve unironically, though I should preface that I’m straight and don't have gender dysmorphia, found myself thinking about visiting a transgender clinic, pretending I had gender dysphoria, and initiating the process that would eventually lead to gender reassignment surgery. I was never truly serious about it, of course, but the fact that such thoughts even crossed my mind shows the depth of my suffering.
>>33898067
>Yo my clownish friend.
lel. damn, this really is a condition that affects people who are chronically online.
>Advice or good words are nowhere to be found especially not here as you can see in the responses you got.
oh, I know. was kind of expecting it honestly. just venting though really.

>>33898093
>lel. damn, this really is a condition that affects people who are chronically online.
Yeah, but this is the first time in idk half a year minimum that I've been on /adv and I see you posting. Coincidence.
These niggas on here can't even fathom how far you can fall in life.

>>33885843 (OP)
What about a penile implant? My dick doesn't work either so I thought about it

>>33898177
>but this is the first time in idk half a year minimum that I've been on /adv and I see you posting
same here pretty much. I don’t really come here that often; not on 4chan much these days either.
>These niggas on here can't even fathom how far you can fall in life.
very true.
>>33898186
it's permanent, and they really only give it to you if you can't get erections. I'm in my 20s too, so, I mean, rarely if ever do they give otherwise healthy men in their 20s implants. moreover, the condition is poorly understood, so jumping the gun like that before we have a solid enough understanding of what's going on is probably a bad idea.

>>33898200
>so jumping the gun like that before we have a solid enough understanding of what's going on is probably a bad idea.
Makes sense, I'm in a similar position as you so I want to ask you, do you have hope for your condition to get better?

>>33898216
>do you have hope for your condition to get better?
I still have hope for some things, though not for others. I hold onto the hope that, in time, more people will come to understand this condition; that awareness will grow, that real research will be done, and that maybe, someday, there will be treatments that truly help me. I have hope that one day I won’t have to live like this, or at least not suffer so completely. I also have hope in ai, and in a way, it’s one of the few reasons I keep holding on. when it comes to love, however, I can't say that I'm hopeful at all. I’m 27 now, and it might take 20, 30, maybe even 40 years or more before I find enough relief to live even a semblance of a normal life. by then, the window for love, for meeting someone, falling in love, building a family, will have long since closed. maybe I have fifteen "good" years left where that’s still "possible," but if I’m being honest, I know those years will likely be consumed by this condition too, slipping through my fingers before I ever get the chance to live them. I don't think my life will ever feel like mine anymore. it belongs to the condition now, and I’m just its vessel.

bumps out 4 OP
dunno much about dicks but maybe sm1 out there can add onto the wisdom of the dick doctors

>>33901441
thanks anon

>>33888389
>problem isn't about my dick being small. it's completely fine when erect. the problem is my flaccid penis is firm and retracted, and the pain and numbness. it's hell.
He did not said the problem was being small, stupid idiot. He said to get a CT scan an replace what's broken, while you're at it, get a penis enlargement since it's going to be expensive anyway.

>>33901532
>He did not said the problem was being small, stupid idiot
did he not say dick enlarging? I've been reading nothing but shit about dicks for the last three years, and this is the first I'm hearing you can get a surgery to enlarge your dick. what exactly do you mean by enlarging?
>He said to get a CT scan
I've done several.
>replace what's broken
only 15 scientific papers have been published on the condition. no one knows for sure what’s actually going wrong, or what's broken. most likely it's nerve that's fucked up, and generally there's not much one can do about that.
>get a penis enlargement
again, what does this even mean? explain what it is you're referring to here

>>33901553
and just to further clarify, I don't have any ruptured veins. the veins of my penis are normal, based on the severl tests I've done.

I know this probably won’t help you and will just be really annoying/harsh BUT I thought I’ll share anyways since I used to feel somewhat similar. Haven’t read any of the earlier replies.

Check out “The Mindbody Prescription” by Dr. John Sarno if you haven’t already.

Like I’m not trying to make fun or anything but I used to have extreme health anxiety and got caught up in this exact one for a bit. For me it’s not anything health related EVER.

It’s psychological in nature. It’s complete mental illness. And the fact that these communities are like made around these hysterias and they reinforce their misery and search for crazy cures and symptoms.

You can find many communities like this for so many medical things.

Anyways check out the book if you want. Meditation helps to melt the tension if you’re obsessed with the whole pelvic floor thing, but the benefit from meditation is probably mental and then relaxes body secondary effect.

>>33901724
Again not trying to like destroy you but you said there’s nothing physically wrong with the veins and that you’re unemployed.

Your life doesn’t sound good. Maybe that’s the problem. You sound very tense like this one medical thing is the root cause of everything wrong that’s ever going to happen and it’s like some fucking insane panic mental loop.

I’m only saying it like this because I had this exact mental loop with like blah blah I’ll never get a wife. Among 100’s of other health anxieties.

Sex is painful for me. I have vaginismus. It’s not the same, but iktf about not knowing if relationships are even possible for me. *hug*

>>33901724
>>33901746
>Check out “The Mindbody Prescription” by Dr. John Sarno if you haven’t already.
appreciate the write up, but ya, have been suggested this before. I can guarantee you that my condition is physiological, and any psychological problems I have stem from having to deal with a physiological phenomenon, i.e. relentless erectile smooth muscle contraction, every waking hour of my life. someone can't think their way into growing a new arm or leg; same applies to my situation, unfortunately. wish it weren't the case.
>>33902555
>I have vaginismus
have dug into your condition before out of curiosity. sending a hug your way too.

>>33902672
Have you ever told a girl about your condition or do you think it has made you avoidant?

>>33902672
While Anon is being really dismissive and not reading the tangible symptoms of your condition, there is something to be said for treating the psychological side. Simply because that's the only thing you have access to at home. I'm sure you've already read up on these things, so I'll just put in a second on the recommendation. This is about mentally coping with the situation best you can, not about using your mind to cure it. About how to avoid making the chronic pain worse via your internal spiraling. Additionally resources around anxiety over chronic illness/terminal illness. A relative of mine dove into some programs about this when he was going through cancer. Just absolutely caught up in his head about what it all means, being trapped in this scenario without a medical way to escape it, and his potential mortality. If you're willing to try guided mediation, that's one avenue.

Forgive me if you've heard this all before and it hasn't been helpful for you.

>>33903789
>Have you ever told a girl about your condition
no. I don't talk to women anymore.
>>33903827
I visit a mental health professional regularly and take antidepressants. I'm doing everything I can, really; well, everything I can to stay alive.

>>33904661
Where are you from?

>>33904807
america

>>33904830
What kind of relationship would you want with a woman intimately? Would you be happy with cuddling and it wouldn’t necessarily have to lead to sex?

>>33905079
>Would you be happy with cuddling and it wouldn’t necessarily have to lead to sex?
with this condition, if I ever do have a relationship with a woman, yes.

>>33905409
I’d cuddle with you if you were in california
t. vaginismus anon

>>33904830
>>33905079
>>33905409
>>33905511
:o

>>33885843 (OP)
Have you considered becoming non binary and getting the gender reaffirming care of having your penis removed?
They leave you with a little nipple that you piss from, and give you a sensitive area under the skin layer, it's quite funny.
I think the only way in which you would be able to engage in coitus that way is through butt stuff - but it should remove the major hindrance to the enjoyment of your life.

>>33905511
I'm on the east coast, but I would too anon
>>33905565
see >>33898093

>>33885843 (OP)
OP I have this condition too. It all started when I was 16 and now I’m 32. It made my life hell and I was extremely depressed and now to the point where I’ve developed psychotic symptoms. I try to do pelvic floor exercises to help but I haven’t seen much progress on that. Mind you I’m also on a cocktail of meds just to get my mental illness under control as a result of getting hard flaccid.

>>33905678
pelvic floor exercises never worked for me either. I've been on antidepressants for about a year now, and though they don't do anything for the condition itself, it has made life more bearable for me. and damn, 16 years. will be exactly 3 years for me in december.

>>33905649
Oh my heart of course you are on the other side of the country. :( Anon, just pls know you are not broken, you are still desirable, and you are still worthy of love <3

>>33905723
picrel is literally us, but the roles flipped around, lol. thanks anon, means a lot. same for you as well :)

>>33885843 (OP)
RoboCock.

>>33905752
Aw cute i could still post contact if you wanted but if it would suck too much it’s okay anon i just wish you the best <3

>>33905836
>i could still post contact if you wanted
if you have a discord or something sure, but only if you're being genuine with me here and not like trolling me or something.

>>33905926
24f, not a troll, I can send you a voice clip. pussydoesntwork@proton.me (will give my disc later). Busy with some stuff now if I take some time to reply anon :)

>>33906021
>I can send you a voice clip
sure, just say a short sentence or whatever and I'll shoot you an email afterword if you're genuine: https://vocaroo.com/

picrel is the email I will use to contact you.

>>33906103
I sent u it :>